Book Review: Why Pelvic Pain Hurts

I love books. I love picking out a new book, flipping through the pages, and escaping for a small time into a different world. My love of reading translates so easily into my clinical practice in women’s health and pelvic floor physical therapy. Clients who have worked with me know that I keep a shelf of related books in my practice for them to look through and enjoy. I find books are so helpful for my clients experiencing related problems. Often times, men, women and children with pelvic health problems feel alone and so isolated. The reality is that these issues are private ones–I will often treat clients whose own spouses are not aware that these issues are occurring! And there are SO many great pelvic health books out there! The biggest thing I love about my clients reading books is that it helps the to realize they are not alone. So many other people have these problems too–so many that there are books written about it! I also think that reading information helps the learning process for many so much more than just hearing information spoken by me! My hope in “book reviews” is to share some of those awesome books with you, so you can read them, recommend them and learn from them! Whether you are a patient seeking information, a health care provider, or just an interested individual, I hope these reviews will be helpful!  Enjoy! 

from amazon.com
from amazon.com

I am so excited to introduce you today to a wonderful little book called, Why Pelvic Pain Hurts by Adriaan Louw, Sandra Hilton and Carolyn Vandyken. These authors are all physical therapists and both Sandy and Carolyn are Pelvic PTs. To be honest, I’ve followed Adriaan Louw for quite some time now. I have read some of his other educational books such as Why do I hurt? and I have even listened to his online educational seminar via Medbridge called “Teaching People About Pain.” He’s brilliant–so I knew I would love this book from the moment I heard it was being published! Who should read it? 

  • Men & Women experiencing chronic pelvic pain
  • Clinicians working with men and/or women experiencing chronic pelvic pain
  • Families & friends of people experiencing chronic pelvic pain

What are the details? 

  • Cost: $15.69 on Amazon.com
  • Length: 67 pages with great illustrations, broken into 5 sections.
    • Understanding your body’s alarm system
    • Understanding your extra-sensitive alarm system
    • Understanding your pelvic pain
    • Understanding your Lion and how it impacts you
    • Understanding your treatment options

What’s so good about it?  As you may know by reading my blog, I love how the current understanding of pain is so much more than just tissue damage. Our nervous system is powerful and incredible, and is significant in the pain experience. Often times, clinicians run into difficulty when they start talking with clients about the neuroscience related to chronic pain– mostly because these people have had bad experiences in the past with people thinking their pain is “all in their head.” Louw does a great job of emphasizing that pain is a real experience no matter what situation it occurs under, but that pain does not always correlate with tissue damage. Hurt does not always correlate with harm. This book uses fantastic metaphors and stories to help drive home key points. The book begins in the first two sections by describing the nervous system’s involvement in the pain experience, and goes into detail as to how these systems become overly sensitized in a person experiencing chronic pain. I especially love the pages where the authors highlight all of the situations that contribute to a more sensitized system (such as failed treatments, family concerns, fear/anxiety, ongoing pain, etc.) as I think this is such a big piece for people to understand. The next section focuses on pelvic pain specifically, initially beginning with highlighting one of the major problems in overcoming pelvic pain (the “taboo”). They then go on to utilize a wonderful analogy of a measuring cup being “filled” by the 400 nerves in the body passing information to the brain. This measuring cup “overflows” when a large volume of information is being sent or when emotions/stressors surround the experience (like a flame heating the water in the cup). This metaphor is used throughout the book with treatment focused on helping the water to stop boiling over.  The rest of this section goes through various diagnoses related to pelvic pain, but also emphasizes that the pain experience (from a neurological perspective) is the same in most diagnoses despite the differences in the symptoms. Lastly, the authors describe the difference between tissue problems and a sensitive nervous system.

Your metaphorical pain "cup"
Your metaphorical pain “cup”

Section 4 utilizes a fantastic metaphor of being under attack by a Lion and describes in detail how the body feeling under a constant threat of danger and in a strong protective response can contribute to experiences such as tender areas in the body, mood swings, appetite changes, fatigue… and much more! They also describe the other areas in the brain that are involved with pain and the overlap with different tasks (such as sensation, movement, and even memory!). They also maintain compassion and understanding for the experience unique to people with pelvic pain, and beautifully state, “At the core of being human, being alive, there are certain bodily functions that should not only be pain-free, but enjoyable…when you have pelvic pain, you’re not only robbed of pleasure, but the pleasure is replaced with pain. How unfair is that?

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Don’t worry- the book does not end here :). Section 5 discusses treatment options emphasizing that treatment should be aimed at stopping filling or emptying the “cup” or extinguishing the “fire” under the “cup.” Then, the authors systematically go through current treatments including knowledge/education, manual therapy, soft tissue treatment, specific exercises, graded motor imagery, aerobic exercises, medication, sitting posture, breathing/relaxation, sleep, stress management, and activity pacing/graded exposure. Under each of these categories, clear explanations are given as well as recommendations to get started! I could write a whole other blog post on these recommendations…but then you wouldn’t be thirsty for more, would you? So, all of that to say– this was a wonderful book! I strongly recommend it for men and women experiencing chronic pelvic pain– it’s an easy read, cheap, and offers clear recommendations to get started toward pain-free relief. Knowledge truly is power when it comes to recovering from chronic pain. Do you have any questions about the book? Have you read it yet? What books do you love and want me to review next? I would love to hear from you in the comments below! ~ Jessica

Taking the first step: Getting moving when experiencing chronic pain

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As many of you know, I recently took a huge step in my career and moved to Atlanta with my husband, accepting a job as a pelvic health physical therapist for a newly opening private practice with One-on-One Physical Therapy. Leaving my patients behind was one of the hardest parts of moving (if you’re reading this prior patient, I miss you!). One of the things I realized when working to find colleagues to treat my current patients was that I treat quite a number of people with chronic pain. And I love it. When I left Greenville, I would estimate that close to 50% or more of my caseload were men and women who had been experiencing pelvic pain for 6 months or more (and many of them, much longer than that!). Often times, people experiencing chronic pain feel trapped in an inactive state—fearing movement, exercise and even social activities as they correlate increased activity with increasing pain. The sad truth about this is that reality and current research tends to show the complete opposite:

Movement is medicine for chronic pain.

 Now, let’s take a step back…

What is chronic pain and what isn’t it?

 I promise this blog post is going to stay on track. Honestly, there are so many people much smarter than I am who have written amazing books, articles, and blog posts on understanding chronic pain. So, I will be succinct here, but give you some good resources at the end if it leaves you thirsty for more.

In short, all pain is produced by the brain. (Your pain is real, not all in your head, but the brain is always really involved!) Pain is an alarm system used by the brain when it perceives damage or even sees a threat of damage to the body. Pain is there to motivate the body to action—basically to help you eliminate the source of “threat.” Example: I step on a tack. I feel “pain.” I move my foot off of the tack.

This alarm system works really well for situations like the one above. There is a threat. We remove the threat. We feel better. But it is important to recognize that the amount of pain does not always correlate with the amount of damage. Example: A man walks into the emergency room with a knife sticking out of his leg, but isn’t experiencing “pain.” A papercut can be felt as VERY painful.

 The point is, the brain takes information in about our current situation, past experiences, emotions, etc. to create an experience of pain that it perceives as useful to us for the time being. This experience is influenced by situation (i.e. needing to get to the emergency room so the knife doesn’t “hurt”) emotion (i.e. No one knows what is wrong with me, so it must be really really bad!), fears (i.e. I am never going to be able to run again!), and life stressors (i.e. going through a divorce when the pain initially began).  

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 So, how does this relate to movement?

For many people experiencing pain, movement often becomes a “threat” to the brain. For example, if a person is experiencing pelvic pain and the brain believes that walking will worsen the pain, then often walking will be a pain producing activity—to protect you from the “threat” of walking! Over time, the threshold for pain can change and people can become more sensitive to movements or activities—basically, the brain becomes very good at playing the pain “tune.” Lorimer Moseley uses the example of an orchestra in his book Explain Pain. If an orchestra plays the same song again and again, they become very very good at playing that song. Our brain works in the same way.

With that being said, we have learned that if we can help a person to move in a way that his or her brain is not protecting or guarding by pain, we can actually reduce the sensitivity to those movements and help a person get back to an active lifestyle with less pain. This is as true for a person experiencing chronic pelvic pain as it is for a person with chronic low back pain or neck pain or ankle pain.

Does it actually work?

 The awesome part is that research has shown that movement and exercise are extremely helpful in pain reduction!  A meta-analysis in 2014 published by the American Journal of Physical Medicine and Rehabilitation found that regular aerobic exercise improved pain, disability and depression/anxiety scores in people with low back pain. Another meta-analysis and systematic review published in 2014 by the Archives of Physical Medicine and Rehabilitation found that walking exercise helped to reduce pain levels in men and women experiencing chronic musculoskeletal pain. Even pregnant women with low back and pelvic girdle pain see benefits of exercise in pain reduction as noted in this 2012 review by the Journal of the Section on Women’s Health.

To see even more benefits of exercise, check out this awesome video by Dr. Mike Evans:

 

So, how do you get started if you hurt?

The key piece here is that we want to start moving at low pain levels in a way that will be therapeutic for your body—not in a way that will cause your body to guard and produce increased pain. When I treat patients with chronic pain, I start recommending movement at the first or second visit (of course, depending on the specific patient). Here is where I typically start:

  1. Begin with small, manageable movement goals: If you have spent the last 5 years moving from bed to the couch, it is probably not the best thing for you to begin a running program. For these people who have been very sedentary, I recommend starting small by aiming to walk around the house once every hour and perhaps adding in a small series of shallow squats at their kitchen counter along with a few other easy exercises. On the other hand, if you are fairly active, but have avoided regular exercise, try to slowly build up to a routine again. I generally recommend starting at 10-15 minutes and building up to 30-60 minutes depending on the person.
  2. Explore new and different exercise options: I have seen time after time that a person may be frustrated that she cannot do an exercise she enjoyed (i.e. running) so will stop exercising all together. Often times, I find that although one exercise may aggravate symptoms, another will be much more tolerated! I recently worked with a wonderful patient experiencing chronic pubic joint and pelvic pain—she loved walking for exercise, but found that walking was aggravating her pubic joint. We tried exercise in the pool, and she LOVED it! Not only could she begin moving again, but her pain seemed to stay at a low level while she exercised! So explore other options—walking, swimming, yoga, pilates, etc. Be open!
  3. Try not to be afraid of pain: Remember to see pain for what it really is! I often tell my patients that if an activity keeps their pain low or improves their pain, it is likely a good, safe exercise for them to be doing. That being said, sometimes patients will try an exercise and it will severely worsen their symptoms—and that is part of the learning process. Generally, we find if we hold off on that activity for a short time while finding another activity that is more tolerable, we can often return to the other activity at a later date with much lower levels of discomfort.
  4. Work with a team: I always recommend that my patients work closely with myself or another health care provider while they are getting back to movement. Sometimes, it is a little of trial and error learning what movement strategies are the most optimal to start with. Be patient, share your experiences, and be open to suggestion for different things to try!

 So, good luck! Get started, and let me know if you have any questions! Thankfully, I am not by any means the only person who has written on this topic, so check out these excellent resources from my colleagues working with people with pain.

 On Pain & the Brain:

 On Exercise for Pelvic Pain:

Do you have any other resources you love? What has worked for you in the past? PTs, what are your favorite suggestions to give patients? Let’s share and learn together in the comments below!

~ Jessica